Preferences and Decision-Making: A Novel Mind-Body Therapy for Systemic Sclerosis-Associated Interstitial Lung Disease

Interstitial lung disease (ILD) comprises a group of chronic lung conditions that cause lung scarring and stiffness. ILD is a common manifestation of systemic sclerosis (SSc) and severely compromises quality of life and increases mortality risk among these individuals.  Interventions that strengthen pulmonary function among individuals affected by SSc-associated ILD (SSc-ILD) could significantly improve health and quality-of-life outcomes and reduce healthcare utilization.

A small group of individuals affected by SSc-ILD responded positively to a slow, voluntary breathing practice and are highly motivated to participate in future related programs or research.  To reflect patient preferences and optimize compliance, subsequent interventions should include in-person instruction, audio guidance, and options for technique modification, body position, and practice times. These findings offer hope for a drug-free approach to improving quality of life among patients with this debilitating condition.